Family and Friends…
We are so excited to announce the1st Annual Congenital Diaphragmatic Hernia Awareness Night at the Kansas CityRoyals game for the 2015 opening weekend series. The game will be held Friday, April 17th at710p. Proceeds from the ticket sales will be benefiting Children's MercyHospital NICU, Kansas City, Missouri in honor of Noah and all CDH Survivors andAngels. Tickets are now available to purchase for $20(includes all fees)and are in Hy-Vee Box seats. This game is the first rematch vs theOakland A’s since the 2014 AL Wild Card Game. Former KC Royal Billy Butler returns to Kauffman stadium as a member ofthe Oakland A’s. The promotion for thisgame is Buck Night ($1 soda, $1 peanuts, and $1 hotdogs). Children 32 inches and below do not requireat ticket to enter Kauffman stadium but must sit on the lap of an accompanyingadult. Deadline for ticket saleswill be Friday, March 20th. Allticket sales must be paid to Tera Linenberger prior to ticketdistribution. We will begin todistribute purchased tickets in mid-March. Please contact Tera Linenberger at firstname.lastname@example.org you are interested or have any questions. Feel free to share with yourfriends and family. We hope to see all of you at the game!
CongenitalDiaphragmatic Hernia is a birth defect for which there is no known cause. It affects people of all races andsocioeconomic backgrounds and occurs in about 1 in 2,000 to 1 in 5,000 livebirths. Basically, a baby born with CDHeither has a diaphragm that is missing or partially formed. This allows the abdominal organs to migrateinto the chest cavity, which in turn causes undeveloped lungs. Typically medical costs are $500,000 to$1,000,000 for each baby. Most NICUstays are 6-12 weeks in length and require multiple surgeries.
Our son NoahLinenberger was born with a Congenital Diaphragmatic Hernia on January 4,2010. During delivery Noah’s heart ratedropped with every contraction, and a rapid assisted delivery wasrequired. After a few difficult momentshe was delivered and whisked away to be resuscitated. After Noah became stable, he was transferredto Children’s Mercy Hospital NICU, Kansas City, Missouri. Since wewere not diagnosed prior to his birth we did not know the statistical outcomesfor CDH. Therefore, our focus was on aday to day evaluation of our son’s status. The days were very long and seemed to be eternal. Our focus was moment by moment, withexpectations of a breath, hiccup, wiggle, or eyes opening. We knew there would be no recognition of us,but any response to our voices or touch gave us hope. Since he was on a ventilator for breathingassistance we were unable to hold, touch, or stimulate him for fear ofincreasing his breathing difficulties. As each agonizing moment went by, his team of specialized physiciansrelayed more information on CDH and decisions we would have to deal with in theupcoming hours. On day 2, Noah underwentthe CDH repair that involved a thoracoscopic procedure that wasn’t veryinvasive. Happily, our son was among thefew that were able to correct the defect by a primary repair and was dischargedfrom the NICU within a week. Today, Noahis a happy and healthy little five year old. CDH babies do not choose to be born and battle this horrific birthdefect. Although as a parent that has seen their baby fight their battle, wechoose to stand up and raise awareness for Congenital DiaphragmaticHernia. Please consider supportingChildren’s Mercy Hospital NICU in honor of all CDH Angels and Survivors. - Teraand David Linenberger, Olathe, KS